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Elder Care and End of Life Decision Resources

Sherri Vaughn and Judy Donlin, Selector Librarians

See Also: Medicare Resources for Mature Adults & Seniors


AARP: Am. Assoc. for Retired Persons

AARP's site is updated often. Targeted to the healthy older adult, its purpose is to encourage, inform, advise, and warn the older consumer about opportunities, resources and hazards.

Administration of Aging

Provides home and community-based services to millions of older persons through the programs funded under the Older Americans Act.

Am. Assoc. of Homes & Services for the Aging

Provides valuable information on nursing homes, continuing care retirement communities (CCRC), assisted living residences, senior housing and community service organizations for the elderly.

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Am. Health Care Assoc.

Deals with issues relating to long term care services and such topics as myths and realities about nursing homes, making the transition to institutional care, Alzheimer's disease, and long-term care (LTC) insurance.

Assisted Living Federation of America and Nat'l Ctr. for Assisted Living

These sites provide information on selecting assisted living or residential care facilities, a state-by-state locator and long-term care insurance.

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Dementia & Dental Care

Advice on caring for the dental needs of a person with dementia, monitoring their dietary habits and helping with oral hygiene and denture hygiene.

Elders & Families

This user-friendly site, intended for health care professionals, older adults and family members, offers links to virtually every aspect of aging: housing options, mental health services, retirement planning and long-term insurance.

Empowering Caregivers

Intended for caregivers providing care to people of all ages. Offers links to sites of particular interest to caregivers of elders.

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Compassion and Choices: End of Life Choices

Shares information on options for a peaceful death and right-to-die issues.

Exercise for Seniors

Exercise for older adults from the National Library of Medicine.

Family Caregivers Alliance, Nat'l Alliance for Caregiving, and Nat'l Family Caregivers Assoc.

These sites are community-based nonprofit organizations that address the needs and interests of family members and friends providing long-term care at home.

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Funeral Consumers Alliance

Site of a "nonprofit organization dedicated to protecting a consumer's right to choose a meaningful, dignified, affordable funeral." Contains a directory of nonprofit funeral consumer groups, FAQs on planning and paying for funerals and burials, "state-by-state legislative activity that has some bearing on funeral-related and end-of-life issues," guidelines for filing a funeral or cemetery complaint, links to related resources, and more.

Funerals: A Consumer Guide

This guide discusses the financial aspects of funerals in the U.S. Topics include pre-need planning, the Funeral Rule (enforced by the Federal Trade Commission) which "requires funeral directors to give you itemized prices in person and, if you ask, over the phone," different types of funerals (traditional, direct burial, and direct cremation), choosing a funeral provider, funeral costs, and services and products (such as caskets and cemetery sites). From the Federal Trade Commission.

GriefNet

This is an Internet community of persons dealing with grief, death, and major loss.

Hospice.Net

Provides information and support to patients and families facing life-threatening illnesses.

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Hospice of Michigan

Welcome to Hospice of Michigan Hospice of Michigan provides comprehensive, compassionate comfort care to people with acute chronic illness and support to their loved ones.

Michigan Assisted Living Centers

Do a Statewide Search for MI Assisted Living Centers (including Homes for the Aged, Adult Foster Care Homes, etc.). May search by county. Click on the organization's name to find location & service details, as well as inspection reports. Site by the state Department of Human Services.

Michigan Nursing Home Directory

Do a statewide Nursing Home Search at this site by the MI Department of Community Health. Basic facility information only. Link to inspection reports takes consumers to the national Nursing Home Compare Web site. No state quality reports or complaint summaries appear to be available online.

Nat'l Citizens' Coalition for Nursing Home Reform

This organization strives to define, achieve and maintain quality of care for people with long-term care needs in nursing homes, assisted living and board-and-care facilities.

National Institute on Aging

STheir mission is to improve the health and well-being of older Americans through research, training, disseminating health information and providing program related to aging.

NIH SeniorHealth

This easy-to-use Web site features health and wellness information for older adults from the National Institutes of Health. Use the buttons at the top of each page to make the text bigger, change text color, or hear the text read aloud.

Natural Death Care Project

Serves as a funeral watchdog with valuable information for undertakers, funeral suppliers, crematoria and cemeteries.

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